
Sole Article 
The experts listed in the Annex to this Decision are appointed as members of the EU Committee on Rare Diseases.
Done at Brussels, 27 July 2010.
For the Commission
John DALLI
Member of the Commission
ANNEX
1. 


1.1.Last name First name Institute or organisation of affiliation
Dan Dorica European Organisation for Rare Diseases
Grønnebæk Torben European Organisation for Rare Diseases
Le Cam Yann European Organisation for Rare Diseases
Nourissier Christel European Organisation for Rare Diseases



1.2.Last name First name Institute or organisation of affiliation
Geissler Jan European Organisation for Rare Diseases
Kent Alastair European Organisation for Rare Diseases
Pizzera-Piantanida Bianca European Organisation for Rare Diseases
Pogany Gabor European Organisation for Rare Diseases

2. 


2.1.Last name First name Institute or organisation of affiliation
Hughes-Wilson Wills Genzyme
Loth Kevin William Celgene
Parker Samantha Orphan Europe
Valenta Barbara Baxter



2.2.Last name First name Institute or organisation of affiliation
Fehervary Andras C. Novartis
Finck Katia Shire Human Genetic Therapies
Tellier Zéra LFB Biomédicaments
Zimmermann Martine Alexion Europe

3. 


3.1.Last name First name Institute or organisation of affiliation
Aymé Ségolène Orphanet Inserm
Donadieu Jean Hopital Trousseau
Donnai Dian European Network of Centres of Expertise in Dysmorphology
Fregonese Laura CHUV Lausanne
Garne Ester Hospital Lillebaelt-Kolding
Taruscio Domenica National Center for Rare Diseases at the Istituto Superiore di Sanità
Vives Corrons Joan Luis European Network for Rare Congenital Anaemias
Wagner Thomas European Centres of Reference Network for Cystic Fibrosis
Webb Susan Hospital de Sant Pau de Barcelona



3.2.Last name First name Institute or organisation of affiliation
Dubertret Louis Fondation Rene Touraine
Eleftheriou Androulla Anastasiou Thalassemia International Federation
Gatta Gemma Fondazione IRCCS, Instituto Nazionale dei Tumori
Kaminska Magdalena European Paediatric Hodgkin Network
Nelen Vera Provinciaal Instituut voor Hygiene
Nguyen Gérard Rett Syndrome Europe
Vittozzi Luciano Centro Nazionale Malattie Rare
Weill Alain European Haemophilia Consortium
Zeidler Cornelia Medizinische Hochschule Hannover

4. 


4.1.Last name First name Institute or organisation of affiliation
Blay Jean-Yves European Organisation for Research and Treatment of Cancer
Bushby Kate Institute of Human Genetics, University of Newcastle
De Baets Marc School for Mental Health and Neuroscience, Maastricht University
Hiort Olaf Universitätsklinikum Schleswig-Holstein
Koutouzov Sophie GIS-Institut des Maladies Rares
Wagemaker Gerard Department of Haematology, Erasmus University Medical Center Rotterdam



4.2.Last name First name Institute or organisation of affiliation
Matthijs Gert Centre for Human Genetics, University of Leuven
Palau Francesc Centro de Investigación Biomédica en Red de Enfermedades Raras
Picci Piero Istituto Ortopedico Rizzoli di Bologna
Rieß Olaf Institute of Medical Genetics, University of Tübingen
Tanner Stuart Emeritus professor at University of Sheffield
Zambruno Giovanna Istituto Dermopatico dell'Immacolata, Roma
